Expensive mums and daddies, grandmothers and grandfathers, brothers and sisters, and it is simple, kind people! I ask you to hear a voice of mother who were distraught with grief, mothers, whose child is incurably sick! To my sonny only 3 years, but for the small life to it pains were necessary to transfer many and to spill many tears. To my son have made the terrible diagnosis: mucopolysaccharidosis 1. Doctors have told that such children live till 6 years and unique possibility to recover — transplantation of a donor marrow. But that it to spend, it is necessary to pay search and activation of the donor in Germany, and it is 16 000€. For us it is the very heavy sum: I have no possibility to work since we with the son do not leave hospitals, and our daddy — the usual mechanic. To sell to us there is nothing — there is no even own apartment (we live together with parents-pensioners), cars. All to whom are not alien another's pain who else has a compassion, whose heart has not hardened in our hard time, I ask: help, than can! To us any help is expensive! Help my son, give it unique chance of a life! With hope, Sidorov Alexey's mum


Kommentary's of the doctor

01.02.2009 the consultation of doctors RDKB on which the question on the further therapy of patient Sidorov Alexey, 12.05.2005 of the river, with the established diagnosis has been considered is spent: mucopolysaccharidosis 1 (a syndrome of Hurlera). Carrying out allogenos Is necessary as much as possible early, before development of defeats of the central nervous system and an internal, for transplantation of haemopoetic deckman cages that is the unique method of treatment of the given disease. The child does not have HLA-compatible related donor that causes necessity of search of the donor of haemopoetic deckman cages through the international register. The HLA-compatible donor will be found in a case if, to the patient hospitalisation date in branch of transplantation of marrow RDKB will be quickly fixed. The manager branch of psychoneurology of Komarova E.D. Attending physician Reznikova A.N.

For remittances in roubles:

The hospital address: 117513 Москва, Ленинский проспект, 117.
Региональный общественный благотворительный фонд помощи тяжелобольным и обездоленным детям

ИНН 7730098129
КПП 773001001
Р/сч. 40703810538110001425 в Донском ОСБ № 7813 г. Москвы
БИК 044525225
К/с 30101810400000000225

For other monetary currency:
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Z188554198927
E422565828680

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[Year's_End]

Originally Posted by dannymsk

Emucopolysaccharidosis

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